BikerBabe

Sounds like Adult ADD. You may want to talk to your doctor and see if he will consider letting you try Adderall. Have considered it myself, I get so sick of my mind multitasking me to death some days. If I'm not doing 3 or more things at once I get utterly bored to death. I will drift off like you are talking about too when reading or watching TV.

Have you tried listening to the radio, watching TV and reading a book at the same time? Can you keep up with it all? Most with ADD can. Been doing that all my life and thought it was normal till I got older and realized it's not.

Only if you have a call in show Cynic. Gotta give the rest of us a chance to call and harass ..err.. I mean .. talk to you. :P

It's been hell trying to get ID again. I have a divorce decree and a true birth certificate (not a copy), but they won't give me a state photo ID unless I can come up with one more form. They suggested a social security card, but I need photo ID to get that replaced. They suggested paperwork from the state when I was on their medical help before I was married years ago, but they require ID before allowing access to the files.

They now say they will take a copy of my marriage license, but in order to get that I need to get downtown and we don't have a car. I'm back in my wheelchair again for awhile since this Crohn's Disease flare is nailing me pretty hard, so getting around isn't easy and of course they won't mail you a copy. When a friend is in town in a month, I am hoping he will have time to run me around town so I can get the marriage license copy and then try for the 3rd time to get a photo ID.

While I understand identity theft is bad and agree precautions need to be taken, they have let this get way out of hand. I'm really getting tired of being a 'non person'.

Back in March I got the news from my birth sister (I'm a reunited adoptee) that our Mom had cancer and it had metastasized. I had only been with Mom in person 2 times in my life and wanted to fly back home to see her and say proper goodbyes. That turned into a big mess, due to the fact you can't fly without ID and all of mine was lost in the last move we did. The state refused to give me even a photo ID unless I could come up with 3 forms of 'other ID' they have on their little list. I only had 2.

I just got done talking to my sis in IM and she told me that the last surgery Mom had revealed she didn't have cancer as the tests showed, but a bad infection. The surgeon got it all and she is now recovering nicely. She is going to live!

When I realized I probably wasn't going to get back there to see Mom, I did the only thing I knew to do. I prayed, as my sis was also doing. God honored our prayers and we aren't going to lose our Mom to cancer. :)--> My tears of sadness are now tears of joy.

I'm very humbled and in awe of His power. Thank you God for loving us and taking care of Mom in the way only you can.

Pardon Us For This Intrusion

But We Are In A State Of Delusion

We Often Feel our Life's An Allusion

Until We See It's Just Our Confusion

Been Bruised Now We Have A Contrusion

Though We Won't Let That Become An Illusion

To Those Who Think We've Committed A Protrusion

... next?

BB

Awww comeon gang, it was only 101 here in Phoenix today! When it gets this cold, real zonies are pulling out their winter clothes to try to keep warm. Hehehehe.

Bah! It was only 107 here in Phoenix today. Cool enough to dig out our sweaters!

BB

Hehe .. seen and answered. :)-->

BB

quote:

Originally posted by Wayfer Not!:

I've never heard of EBA. It sounds bad (bubbling?) I will have to look it up on the internet. Is it an auto-immune disease? How do you treat it?

I work with a lady who's daughter has Crohn's. She's had it since she was a junior in high school. Thish girl had been chunky (up to a size 18) because of oral steriods she had been taking for other disorders. Once she got Crohn's, she started loosing weight like crazy. She is stick-thin now. She now has Remacade drips every two months, and she seems to be doing well on that.

EBA is related to the Crohn's and 4 out of every million Crohnies get afflicted with it. I'm one of the 'lucky' ones. LOL. It is also an auto-immune disease. I've had Crohn's since I was born, but wasn't Dx'd till 7 years ago. I remember being in 3rd grade when I saw the first little water blister on my hand, it got gradually worse every year. Today when I have a flare, my hands will get covered in the little water blisters and they itch, hurt, seep and get infected, leaving my hands almost totally raw skin.

Here is a picture I took of them a few years ago during a flare. Be warned, it's nasty looking. http://www.xworld.org/pix/bbhands.gif I don't want to link the picture directly into this post, I know not everyone would be comfortable seeing it.

Like your friend, I'm an expert at losing weight, although not by choice. At my low 7 yrs ago I was 72 pounds, which is what got the doctors to finally listen to me and decide that maybe I did have gut pain and there really was something wrong in there .. I wasn't just a drug seeker or a liar. They cut out a little over a foot of my small bowel and now all these years later, I'm finally back up to 90 pounds. Normal for me is 95 to 100, so I'm fairly happy where I am. Of course I'm flaring again now, so I'm again having to struggle to keep the weight on and the pain/weakness has me back into my wheelchair when I have to go out of the house on very rare occasions.

The prednisone I take for the Crohn's when I have a really bad day (when the bleeding/mucus shows), also works to stop the skin disease. As much as I hate the side effects of the drug, I will take it for a few days once a month or so to get the blisters somewhat under control. I've never been without some raw spots on my hands though since I first noticed them so many years ago in 3rd grade, 40 years ago.

I have no insurance, so I can't afford the Crohn's drugs I need to be on. A friend pays so I can see my doc a few times a year and covers the cost of my painkillers which allow me to at least stay out of pain every day. For those that understand chronic pain, mine doesn't fit the little charts, I pass out from mine. LOL, I've become a fixture on my bathroom floor more times than I can count over the years. Such fun .. NOT!

Remacade costs about 4000 bucks a treatment, so you must have insurance to get it. Out of the question for me. Also a Crohnie friend who has had them only did good for the first few. This flare he's having now hasn't been touched by them and he's probably going to have to have surgery soon. I'm glad to hear they are helping your friend. As you said so well, everyone with immuno disorders are affected differently. That is why it's so hard to treat them.

BB

I have Crohn's Disease, EBA (Epidermolysis Bullosa Acquisita - bubbling skin disease) and Fibromyalgia. Anytime you wanna have a gripe session about immuno diseases .. feel free to give me a shout.

BB

quote:

Originally posted by rascal:

I talked with a lady last night who fled her first appointment as well...when she was taken back, it had been arranged to knock her out with drugs for the procedure.

I would be that lady Rascal referred to in her post. I had just turned 18 and my mom still held the purse strings. It was either do as I was told or live on the street. I did as I was told and of course she told me what to do using TWI as her 'source of authority'.

I remember being taken to a clinic and sitting there in the reception area listening to the women talking to each other. Many were 'regulars' and were talking about their abortions as if it was an everyday thing. Some were hookers cause they were discussing not knowing which of their 'johns' was the father. I totally freaked out and ran out of there as fast as I could.

There was no talking me into going back inside that clinic, so my mom took me home and next arranged for me to have the procedure done outpatient at a hospital by a OB/GYN doc. I remember lying there in the room and hearing the doc walking down the hallway to the room. He was laughing and teasing the nurses as he walked, a few of the ladies would squeal and laugh as he patted them on their butts as he passed by them. Then he was in the room and put me under before I could run away again.

I supposed I should mention that I was told (without any tests being run) that the baby may not have been normal anyway, since his father had used drugs in his past. I was young enough I bought that lame excuse, of course today I know better.

Years later, 10 to be exact, I broke it off with a TWI boyfriend I had been dating for some time. I was living in a little cottage behind a main house in a safe neighborhood. I forgot to lock my door one night, something I did on occasion without any worries, but that night the ex got drunk and decided he was horny. He came to my place, late at night when I was asleep, let himself in the door and I woke up to find him standing over me in my bedroom. I know I don't need to tell anyone here what happened next.

About 2 to 3 weeks later I got very, very sick. My neighbor arranged to get me to the ER and they gave me some medicine to make me feel better, then handed me another script telling me to make sure I took the prenatal vitamins, they were really good. I freaked .. I had no idea I was pregnant. A few days later is when the bleeding started.

I couldn't afford to go into a hospital for a D and C to clean myself out after I started the miscarriage, so I went the only route I could afford .. an abortion clinic. As I laid there, awake, and listened as the doctor did the procedure, I couldn't help but think of the real abortion I'd had when I was 18. That is when it hit me soooo hard that I had murdered my 1st child. While I've repented and know God will forgive me, forgiving myself for not being stronger and fighting more doesn't come so easy.

Today I have taped to my monitor a lapel pin, still attached to the little plastic card. It is called Precious Feet and it is a pair of feet molded out of silver, the same size the feet of a 10 week old fetus in the womb are. I found it at a Christian Bookstore near where I live. I look at it many times a day and it helps me mourne the loss of that baby I killed.

quote:

Originally posted by dmiller:

Our time on earth is short -- live large!!

Easy for you to say Ole Tall One!!!

BB

quote:

Originally posted by Tom Strange:

Bikerbabe! Are those wheelie bars I see???

Yep, they sure are. :)--> Not that I've learned to do wheelies in the thing yet. *sigh* This is not to say I haven't been known to do donuts in the middle of parking lots or freewheel (one big push, then let go and roll) down the grocery store's parking lot, with the nice long slant it has, as I am screaming 'YEE HAW' at the top of my lungs. This is always great to do when you want to really embarrass your children who are with you. My daughter has told me a few times to act my age .. to which I reply 'now what fun would THAT be?'.

Hopefully I won't be stuck in the darn thing too long this go round, but while I am, I will have as much fun as I can when out in it.

BB

Like this?

The ex got the harley, I got the divorce. These days, I ride this:

BB

Hi, my nick is BikerBabe, I'm a brat.

For those curious on what happens when you said 'no, I won't speak in tongues and interpret' when it was requested of you in twig ... LOL, I'm proof you can do that and not get killed off by an overzealous twig leader. This is not to say I didn't get into a lot of trouble. Guess it didn't help much that my brother in law was leading twig that night. He didn't talk to me much after that day and avoided me all he could.

I've never been one who likes to speak in front of a group and twig was no different. I found it easier to say no than to make myself a nervous wreck by doing as asked. For those that don't know, I have Crohn's Disease and stress makes me flare badly. The physical pain was much worse than getting avoided or yelled at any day.

BB

I'm trying to think of anything good I got from TWI. I did learn from them how to harden my heart to anything and anyone, which I have used at times when dealing with someone who has just been thru a painful experience, so I am able to stay calm and listen to them talk it thru, without getting torn up myself in the process. I also am able to sit calmly while someone screams bloody murder at me, calling me every name in the book and not bat an eye, thinking to myself 'what an idiot, you can shut up at any time now'.

All the other memories are very painful and depressing.

My question would be did VP and Craigiepoo ever pay ABS at all? Does anyone know?

BB